The GP phoned at 8.30am, which I thought was nice because it meant he’d done it first thing. He does seem to care and try really hard to help, which feels very reassuring.
We weren’t on the phone long as the GP spent most the time being pissed off that things were still as bad as they were and that we hadn’t heard anything from the urgent referral to the psychiatrist.
When the GP checked the system he said that there was a note saying the psychiatric services had sent us a letter (I presume with an appointment date?), but as they hadn’t heard from us we had been discharged from their services.
We never got the letter.
I told the GP that this had happened before with our last psychiatrist; missed appointments because we never got the letters they sent, even after we repeatedly gave them our address. The GP said they would have the same address as he had, and when he read it back it was the right one.
This is disgusting – we have been struggling for two months, just waiting for this appointment, and they didn’t even try figure out why we didn’t get in touch!
The GP promised to chase this up, and said he can see we need help urgently and he really will try get us that. He said that he thinks it would be beneficial for Anon to see someone regularly, every few weeks, and has said that although the first appointment with the psychiatrist will have to be in a hospital, after that we could hopefully meet up at our house or on neutral territory.
Anon was freaked out immediately after the phone call. Lots of different worries about the GP and then general terror about the psychiatrist appointment. I managed to redirect her into looking up meds she is willing to try, as we lost the last list, and that calmed her down a little.
I’ve also been helping her look and it’s bloody tough. I know Anon is sensitive when it comes to potential medication side effects and finds many scary, but even I wouldn’t consider taking some of them!
Take Saphris / Asenapine for example, here are some of the potential side effects:
- Abnormal or decreased touch sensation
- inability to move the eyes
- increased blinking or spasms of the eyelid
- lip smacking or puckering
- puffing of the cheeks
- rapid or worm-like movements of the tongue
- sticking out of tongue
- trembling or shaking of the hands or feet
- trouble with breathing, speaking, or swallowing
- twitching, twisting, uncontrolled repetitive movements of the tongue, lips, face, arms, or legs
- uncontrolled chewing movements
- uncontrolled twisting movements of the neck, trunk, arms, or legs
- unusual facial expressions
- weakness of the arms and legs
- Blurred vision
- pounding in the ears
- slow or fast heartbeat
- Black, tarry stools
- blood in the urine or stools
- changes in patterns and rhythms of speech
Anon has found five meds she would happily try, but none of them are approved for Bipolar in the UK (could be used off-label) and both Trileptal and Topamax are only used for seizures here. Even so I am glad she has found some she is willing to try, it is up to the psychiatrist to help us find something that works now.
In case anyone’s interested, the meds Anon is willing to try are:
1) Latuda (Lurasidone)
2) Trileptal (Oxcarbazepine)
3) Invega (Paliperidone)
4) Risperdal (Risperidone)
5) Topamax (Topiramate)