Did you know there are over 40 different type of seizures?
When people hear the word epilepsy, they think of people dropping to the floor and shaking…but that isn’t even the most common type of seizure!!
The most common type of seizure is complex partial (also called focal impaired) seizures; where the person looks conscious, and may move or wander, but in actual fact they have lost consciousness. Think of the phrase “the lights are on but nobody’s home”!
I have simple and complex partial seizures. I find on an almost daily basis that because my seizures don’t involve dropping to the ground, people don’t take it anywhere near as seriously. This pisses me off, because I deal with the following yet I have it ‘easy’?!
- Over a dozen seizures daily that last 1-2.5 minutes at a time
- Clusters, where I have half a dozen seizures in a 20 minute period
- A complete loss of control about where these seizures happen…it can be mid sentence, when I’m eating, surrounded by people, staring at someone etc
- Feeling exhausted afterwards
- Feeling spacey, slow-brained and confused
- After complex partial seizures I act erratic, and may shout swear words, burst into laughter, or gesticulate hugely with my hands. People have called me disgusting, because they assumed I was drunk / on drugs
- Before about 70% of my seizures I experience an aura, which lets me know a seizure is incoming. My auras vary from flashing white specks (the most common), to a panic aura. I feel flooded with panic, and often end up hyperventilating and crying, THEN having a seizure
- Losing large chunks of memory, hours at a time
- Not being able to go out without wearing gigantic ski goggles
- Having to avoid bright lights, flashing lights, arcades, the cinema, and bodies of water
- Having several migraines a week, because my brain is mush from all the seizures
Epilepsy is an invisible illness. There’s so much suffering going on under the surface that passers by don’t see.
For anyone interested, this is me during a simple partial seizure