Life is throwing so much BS our way XD
Obnoxious GP, the most insane toothache that has spread to my whole jaw, my partner is ill, we had a really stressful day today with a damn electrician, my seizures have been terrible…and have I mentioned ow toothache?! 😀
The electrician came today, and all we’d been told is that it would be a ‘quick job’, He gets here and tells my partner it’s going to take SEVEN HOURS!! Holy shit.
So for the entire time I’m sat in a room upstairs out the way, because oddly enough I don’t want to have seizures in front of a stranger in my own damn house…but eventually the lighting in this room fucks with me (normally we’re only up there for an hour max) so I fall into a huge seizure cluster with an awful panic aura.
And after all that, one of the things he did was switch the light in our bathroom to a new fitting and bulb. We’d mentioned to our landlord if it was gonna be a bright light could we swap it somehow, to try prevent accidental seizures, and the landlord didn’t respond. We now have this behemoth of a light in there that is SO FUCKING BRIGHT.
I immediately hung a notice on the door, to try prevent people accidentally leaving the light on and me going upstairs and being immediately triggered *sigh*
After the electrician had finally gone I had a nap. I woke with some killer seizures (one lasting 3 minutes 25 – possibly my longest awake seizure to date?!) and in agony from toothache.
(me summed up in a photo today – blank, seizey, befuddled and in pain XD)
Thankfully stressful shizz is over now, and we have friends coming to stay this weekend, so that should be fun. I love being able to socialise and have friends stay now, for the past 6+ years I have been too mentally / physically unwell to manage it, so this is a fun achievement 🙂
Please send us healing and happy thoughts, we both feel like zomibies XD