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This bad day got busted!

Today started off with my depressive episode feeling the heaviest yet, but the day got completely overturned with a succession of awesome things happening 😀

This normally never happens, we have the worst luck haha, so yay!

First thing…Halifax got in touch about my complaint

I complained about the way they treated me in terms of my title, that they don’t have anything outside of Ms, Mrs or Mr on their system, and also that the staff member had no sympathy for me having seizures / brain fog.

Well, they gave me a monetary compensation and far FAR cooler – THEY ARE ADDING THE TITLE MX TO ALL THEIR BANKS, NATIONWIDE!!! 😀

They said it might take some time, but they are actually doing it! And I got the first Mx card from a Halifax ever, which my mum pointed out haha, and how cool is that?!

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Woohoo! Thank you Halifax for being so good 🙂

On top of that, when I text my mum the outcome she was amazingly wonderfully supportive and impressed. We then had a really, really awesome conversation about the name change, me being non-binary, how I felt etc etc.

My parents haven’t seemed particularly supportive throughout this, so this came out of left field and made me so hugely happy!! She said she’s gonna start trying to call me Dally too haha, which will be weird but awesome XD

Happy me’s from today!

To celebrate monies, we went out and explored somewhere we’d never been before.

I’m trying to push myself for further and further train journeys now my polarized ski goggles are helping so much with seizures. This was my longest journey yet at 35 minutes. Great day, and I got to go around four different pet shops – something I haven’t been able to do in YEARS!!

We found a fab new herp shop, and guess what? WE RESERVED A ROYAL PYTHON!

I’ve wanted a Royal for almost a decade haha, but have always opted for other snakes when we’ve been looking for one. The pet shop guy was showing us loads of herps though, and this Royal was for sale and it was so tame and he said it was a great feeder…and it just happened 😀

I’m collecting it this weekend when my parents come visit us, so we have a few days to sort the viv out. If you don’t like snakes, look away now and scroll to the red word SAFE!

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The snake in the middle is mine! ❤

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SAFE!

We also got a bite to eat at a Costa, and I found some new walking boots in a charity shop. Hells yea!

 

I only had four seizures whilst out, and we were out about 3.5/4 hours too 😀

Also check out this pic from the train on the way there…LOOK HOW NORMAL I LOOK!! I couldn’t ride trains for so long, and there I am just chilling reading a book!!

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Train back wasn’t quite as fun, as there were some obnoxious teenage girls sat opposite blatantly laughing at my goggles, but for a depressive episode I dealt with it really well, so I guess I can be chuffed with that 😛

Hope y’all have had as good a day as I have!

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Epilepsy success: Blue Tinted Polarized Goggles!

So today has been INCREDIBLE!!!

About a week ago someone told me that polarized sunglasses help them when they feel a migraine coming on, and they wondered if they might help me with seizures. I am hugely photosensitive, to the point that changes in lighting (eg going indoors from outside), strobes, bright lights and reflections all trigger seizures.

I live a life of gloom; our curtains are always pulled shut and in the evening we have to use lamps hidden partially behind curtains, rather than turn on a big light.

I did some research into polarized lenses and epilepsy, and found that blue tinted polarized glasses have been found to be helpful in individuals with photosensitive epilepsy. So I ordered some ski goggles in – in part because they’re comfortable and easy to wear over my glasses, and also because ski goggles keep the light out much better than ski goggles.

When they arrived, they were HUGE…but they work wonders 😀

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Today I went out for 3.5 hours (which is a massive deal for me). This involved two 45 minutes bus journeys (I normally have at least half a dozen seizures on a 20 minute journey) and I went into brightly lit shops for the first time in a year!!!

Before this the only shops I was able to go in were dingily lit shops, such as most charity shops. If I nipped in and was wearing a sunhat, I could cope with them. But I hadn’t been in any shop with bright lighting (eg. Waterstones, supermarkets, chain pet shops, shopping arcades etc) in a year.

Today, because the goggles were helping so much, we risked it…NO SEIZURES!!

To be in a supermarket, and able to look around and find things I wanted to buy, without worrying about seizures or feeling ill, was truly amazing. Me and my partner were just walking around with huge grins on our faces 😀

As soon as we realised that it was safe, I went into Waterstones too! I *love* Waterstones and could easily spend a good few hours in there, so getting to go in for twenty minutes was phenomenal. I even got a new dog book!

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Finally we went into a shopping centre, and got some macarons. The guy commented “wow, those are some serious glasses!” I explained what they were for and that this was my first time out somewhere so bright, and the guy was lovely – he was genuinely happy for me, and gave us four free macarons 😀

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On this trip I had seven seizures total (5 simple partial and two complex partial), but all but one was at the very end, when my brain had had to cope with too much and was shutting down. Other than the very end, I had just one seizure 🙂

The downside to the goggles were all the rude stares, comments, and sniggers I got. Today alone over a dozen people commented on them (generally degrading, or simple “what the fuck?” type comments) and some people walked past gawping or stood uncomfortable close and just frowned at me.

The most hilarious comments were a kid asking his dad if they were VR glasses, and was I walking around in virtual reality (!!); and a group of teenagers sniggering “nice glasses!” as they passed – my bf then replied “they’re for epilepsy”, and their faces fell as one mumbled “oh…sorry…” XD

I’m going to write EPILEPSY on the band and try fathom a way to put it on the front, in hopes of stopping the rude morons commenting, but for now I’d rather deal with anxiety around arseholes than have constant seizures and not be able to go anywhere!

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Sometimes days can be good

Mostly, this blog is a lot of doom and gloom, because a lot of our lives are difficult and miserable.

Well, today we had a really, really good day 🙂

We went to a kite festival, you can read all about the hilarities and see pics over on the other blog.

Not only was today a good day and we had a lot of laughs and a lot of fun, but I coped really well being out in public too, and at some points we were even in fairly busy areas. A few people even came up to give us advice about kite flying, and I didn’t think ‘shit they’re plotting to kill me’, I managed to respond to a few even!

The past few days have been the roughest since starting on Citalopram.

I don’t know why, but my anxiety has been highest than it has been the entire time, and my mood has been low. I’m still doing much better than pre-Citalopram times, but it hasn’t been fun.

Today, however, has been lots of fun 😉

Savour the good days!